Kristi's hematocrit is around 25% today. I am surprised that it's still so low. She does look better though. Today is day four of chemo. She is on the experimental arm of a study. Today is the experimental dose. They gave her Tylenol and Benadryl as premeds. Unfortunately, Kristi uses Benadryl as a sleep aid. So, I am expecting a groggy morning. Despite the slight change in treatment, there will be little deviation from the routine. I feel like a little kid, having such a predictable day, but it's also a comfort.
12:00am : Vitals
04:00am : Vitals
08:00am : Vitals, blood sample, visit from the resident
08:30am : Breakfast
09:00am : Morning Nap
09:45am : Rounds
10:30am : Morning Laps
11:00am : (In general) the first friends visit
12:00pm : Vitals, chemo change over
12:30pm : Luncheon
01:00pm : Afternoon Laps
02:00pm : Vitals
02:30pm : (maybe) napy time
03:00pm : Visits
.... and so on
Sorry, that was getting tedious.
I should also note, one reason the genetic test results are important is that they help determine the need for a bone marrow transplant. The transplant process would involve (yet) another round of intensive chemotherapy. This one would be even more aggressive, with the aim of completely eliminating the marrow and specifically any lymphocytes. The marrow would be extracted from the donor and injected (via IV) into her blood stream. This process would take about six weeks. A large part of this time would be spent in isolation, as her immune system would be like a new-born's.
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kristi and joe.
fucking lame! gordon sent me the link and as i am now totally caught up let me just say the obvious: if you need anything seriously don't hesitate to ask and get better soon so you can write your thesis. heheh.
im thinking of you guys, well mostly kristi. get better and you are seriously the hottest swollen person i have ever seen, ever.
xo
meghan (formerly of meghan and gordon)
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